Showing posts with label Loss of reality. Show all posts
Showing posts with label Loss of reality. Show all posts

Friday, June 17, 2011

From the dark side: The damage that haterd can do...Part 7

Penultimate

In September last year, just a few days after my birthday, my Grandmother took a tumble down a step (that was only about 2 inches high) and broke her hip. We had been forced to moved to a new house as the farm my parents had lived on for the past seven years was sold. The move sent my grandmother in a continuous downward spiral and we thought things couldn't get any worse...until that fall. After that life became unbearable for all of us.

She had to have surgery and was in hospital for a month. Our entire family and extended family took turns in sitting with her in hospital to comfort her and remind her every few minutes where she was, what had happened and prevent her from trying to get up or pulling her catheter out. I sat staring at her not being
able to offer any words of support other than the stereotypical cheesy stuff when it was absolutely necessary. My Mom was unhappy with the care she was receiving at the hospital and brought her home early. That day was one of the worst days of my life. It was just me and Georgina and the amount of care my grandmother needed was overwhelming.

That fall shot any sanity my grandmother had left. When she came home from the hospital we had to put her in nappies/ diapers because she was incontinent. Her vocabulary were severely compromised but that didn't stop her talking in a continuous monotonous voice from the moment she woke up until she went to bed. The only talking she ever did was in the form of some very weird prayers or calling my mother. That was on a good day on a bad day she would shout and scream continuously. The talking alone drove us up the wall. Even though her leg healed very well, Alzheimer's had started to claim her motor skills and she was confined to a wheelchair, only being able to walk very short distances with a walker. She screamed every time we moved the wheelchair and taking her in the car was impossible because it was "To fast" and she was afraid we were going to crash.

My Grandmother never slept. She had no concept of time or of night or day. My Mom had to eventually start sleeping with her because she was so terrified of being alone and would try to get out of bed. She had several panic attacks a day but my Mom was hesitant about putting her on medication because she didn't want her to get addicted. Though, I understand where my poor Mom was coming from the whole thing was absolutely ridiculous. Eventually one night after I found her in bed choking and hyperventilating which resulted in us having to call an ambulance, my Mom relented and my Grandmother was put on a sleeping pill and sedatives, providing a little relief (and some more sleep) for all of us.

Whether it was because of the drugs or the disease she began having hallucinations. She had entered her own world never to return to the real one. If you told her something that she was seeing wasn't there it was like she either wouldn't hear you or comprehend you and just went on talking about the strange imaginary place she was in. The doctor put her on medicine they use treat people with schizophrenia, which I found odd but it didn't make any difference any way.

She hasn't been as aggressive as most Alzheimer's patients but she has tried to take a few socks and slaps at my Mom. The worst was when I found her trying to strangle Milo- he and jumped in her lap and frightened her, when I walked in I was so horrified I grabbed him away from her and slapped her hand hard. She then told my Dad I had tried to kill her.

Her final obsession was with my Dad. His name was always in her mind and in the last few months she has called for him continuously throughout the day. At first she was convinced he was her husband (something my Dad did not take very kindly). Then to her, everyone she saw was "my Dad" whether or not they were even male or female. The saddest part was when she finally forgot who my Mom was and stopped calling her by her name. I think because she always heard me call my Mother, "Mom", she started to do that too. My Mom would not accept this until the day when my Grandmother was crying and saying over and over again, "Where is my mother?, I want my mother!", my Mom gave in, knelt down next to her and said, "I am your Mother". My Grandmother then cried over and over again, "Oh thank you!, thank you!".

They say that with Alzheimer's patients, the happiest memories go last and this was true for my Grandmother. Her very last memories to go were those of her childhood and when she was at boarding school. My Mom tried to talk to her as much as she could about those days, hoping she would be spared a while long with those happy treasures in her hands. But ultimately, my Grandmother would wake up every morning having lost more of what little memory she had left. And so we watched as every last thread of her life slipped away and she became a stranger to us and us to her.

It is very difficult to convey in words how horrendous the last year has been. Our family, my parents in particular, have faced many trails in their lives but very few of them can compare to this. What we have watched happen is truly frightening. Torture is the best way to describe the emotional impact it has had on us and the toil it has taken on our lives.  Our entire lives revolved around my Grandmother and her care. We had very little freedom. We could never go out as a family and if one of us was out it could only be for a few hours because someone was on duty at home and needed to be relieved. It was worse for my mother- for the past year she has been house bound.

It has had a different impact on me. Of course I was to busy with my damn revenge to notice that someone who loved me my whole life and nurtured me (in her tedious, bossy way), was slipping away. But there were moments when the pain of what was happening would lash at me. Watching Little B running to her Great- Grandmother arms wide open only to get pushed away because she thought Little B was attacking her. And then seeing my Mom cry because she missed her mother so much- she was there but she wasn't at the same time. My Dad used to say that the person we had in our house was no longer my Grandmother and that she had left us some time ago. As harsh as that sounds he was right.

And where did all my hatred get me?. Well it got me nowhere. It was useless. It just made me more miserable and more of a liability to my Mom instead of an asset when she desperately needed help. I felt bitter because I had gotten nowhere. I'm still angry at my Grandmother but how is that benefiting me?. It's funny how human beings see holding on to anger as doing them some sort of justice when they have been scorned. In the end no one cares and it's like going around in a circle.

Thursday, June 16, 2011

From the dark side: The damage that hatred can do....Part 6

I'm not sure when my Grandmother was diagnosed with Alzheimer's. Honestly it feels to me like she has always had it. And living with someone who is afflicted with this condition is heartbreaking as well as being pure hell.

Because of the recession in 2009 I could no longer afford to live and study on my own. I moved out of Cape Town and back in with my parents....and my grandmother. My Mom still had her own business then and would work long hours. My Dad would work from home in an outside office. The care of my grandmother was left up to a lady that my Mom originally hired to do cleaning. She was very good with my grandmother and would cook for her and take care of her during the day while taking care of the house. Soon though my grandmother started to become more and more of a full time job.

We had a cat back then who my grandmother became obsessed with ( a commonality in Alzheimer's patients). If the cat wasn't within her line of vision she would panic, she tried to follow this cat wherever she went (and if you own a cat you know that this is impossible). If the cat did anything like "meow" or role around or ANYTHING she took as a sign that the cat had to be hungry and would get furious at all of us, accusing us of starving the cat. At least once an hour there was a blow up with her about the cat. The worst was when the cat went off somewhere as cats do, my grandmother would leave the house and go and try to find her. My parents lived on an apple farm and this happened several times a day and either Georgina, myself or my Dad would have to go out and frantically look for her. Then she would start accusing any stranger she came across of stealing the cat. And then came the day when she claimed that our cat....was not our cat.

At night her obsession switched to the locking of doors. After she went to bed she never slept as she was up and down all night checking that all the doors were locked. Of course she would always forget that she had already checked and keep on checking all night. Soon she started waking us up at night "Wondering where everybody was". She needed help with dressing, bathing and eventually going to the toilet. She was terrified of being alone and always afraid of some impending doom. She would work herself up into into a crazy state that would always end in her crying hysterically. Her balance was effected and we constantly had to watch her to make sure she didn't harm herself.

And then of course, there was her mental state. It probably sounds petty when I say that her repeating the same thing over and over again or the 50 million questions she would ask...by breakfast, was irritating. But just imagine having to hear the same line over and over and over again knowing that telling them to shut the hell up would have no effect what so ever AND you actually couldn't even get angry because it would agitate their mental state even more?. Well... I'm sure that's how my Mom must have felt. I didn't let it stop me from screaming my lungs out besides, it me feel better. Even if she would be beside herself once I had calmed down.

Throughout all of this I was horrible to her. I hated her. I kept thinking, "After being a constant intrusion in our lives you had to go ahead and become a burden too". I didn't care that she was afraid and confused and suffering. I just cared about venting all the anger I had held inside of me for years.If I wasn't ignoring her, I was yelling at her. I called her a "A demented old cow" and " A senile old woman". I resented her always having to tag along when my Mom and I were out together. My Mom may have been able to control how I spoke to her when I was little but not now. This lead to many fights between my mother and I which of course made me even more angry.

But even through her dementia my Grandmother still managed to retain her good qualities. After any attack I had made on her the disease would have her promptly forget that anything had happened. But the unhappiness remained. She was unhappy and she didn't know why. Knowing my Grandmother she probably thought it was because of something she had done. She would seek me out and want to hug me and love me. This made me feel like the worst person ever born on God's green earth and I would try to get away. My grandmother may not have been able to rescue me from my abuse but she was always there to comfort me. When it was my turn to do the same I failed her I did nothing but make her suffering worse. The full implications of that haven't hit me yet but they will eventually. I will have to deal with what I did for the rest of my life.

STILL more to come....

Monday, January 17, 2011

Children of darkness

                                                                                                                                               
Txema Rodriguez

Fiona Coyne was an actress, communications consultant and best known as being the host of Weakest Link South Africa. I remember when a local T.V station sent out a nationwide casting call to find the host for the Weakest Link they wanted someone who was "as tough as nails". In an interview with Fiona after she was cast she very confidently stated "I am honestly not intimidated by people". Man, I envied her!. And she lived up to her reputation on the Weakest Link for her biting comments used to cut over- confident contestants down to size. She was smart with a post grad in Clinical Psychology. But she also had a great heart- being actively involved with charities focusing on nature and education. She sponsored a disadvantaged student through university. She indulged in the finer things in life: theater, opera, travel. Everyone described her as fabulous and feisty.

On the 19 August 2010, her housekeeper arrived at her house to find two letters on the kitchen table, one being addressed to her. In the letter she said she was very sorry and told her housekeeper to call the police immediately, she even wrote down the number. When the police arrived they found Fiona's body in her bed. She had committed suicide. The entire country was shocked and in utter disbelief. In everyones mind, including those closest to her she was the last person that would have taken her own life. Not just because she "seemed" to have it all but her very personality didn't seem to fit the profile of someone on the edge. Fiona had planned her suicide to the very last detail. In a letter to her mother she said she had weighed up the positive and negative aspects of her life and made her decision based on this. This story is especially tragic because just two months later, Fiona's older brother Bruce, heartbroken over his sister's death also took his own life. Sibling love can run deep.

This time last year, there was an amazing story of a man who parked his Audi R8 sportscar at the Table Mountain Cable way station and handed his keys to 8 car guards, saying, "It's yours". The story reached the evening news and everyone was curious about the anonymous donor. Generosity rubbed off on the lucky car guards and instead of selling the car immediately they cut a slit into the bonnet where people could donate money to charity. Eventually they did sell the car, four of the car guards were able to return home to The Congo with enough money to support their families for a life time. Two of the car guards used their money to start a creche for disadvantaged children and donated money to Haiti after the earthquake.

But where this story unfortunately ends is with the donor- his name was Rob Taylor and last week he made headlines again when he took the cable car up Table Mountain and jumped to his death from one of the look out points. Sadly this has shed some light onto his donation and the real reason why he gave the Audi away. Some people believe that he even meant to commit suicide they day he gave his Audi to the car guards. He was a wealthy property developer. People who knew him said he always gave to those less fortunate.

Now closer to home. When we moved into our current house a we hired some people to help us. One of them was a lady who had a daughter- in- law. This daughter- in - law was a diabetic. I am not to sure of the circumstances but her husband really wanted children and so she consulted her doctor. But her doctor gave her devastating news that she could not have children. She went home and apparently took every pill that she could find in the house even vitamins. She was only 25 years old. This has rocked the small farming community where I live. Her husband was so distraught over her death he had to be hospitalized.

Her death has also struck an emotional cord with me and not just because it was suicide. I cannot have children and this has made me re-evaluate how I handled this news ( I shrugged it off ) and what this could really mean for me. One, I have felt very guilty for being able to handle this news so well and two I have realised that the real consequences of this are still coming (will save that for another post). This girl had no previous history of depression or mental illness I can only imagine the emotional horror she must gone through in those final hours.

A few months ago I walked down to the cottage by the lake on the farm scoured the the front lawn for a sharp stick, sat down on the grass and began cutting my wrist with the sharp end of the stick. It really hurt and I wasn't really making any progress because the stick wasn't sharp enough. In the end I gave up because it was sore and I was just making a mess. I went home feeling like a caged bird. That night my Mom took me out for dinner and told me my godfather would be paying for a psychologist.

There is no real message behind this post, just self- absorbed pondering: How were all these people able to go through with it?. Why haven't I been able to?. I have been suicidal since I was 11. I remember standing on the balcony of my room really, really wanting to jump. But I didn't. Why didn't I?. I have been at the edge more times than I can count and I have turned back. How?. I don't think the answer is because I really want to live, deep down inside. Maybe I'm afraid of death- I don't know. During those times I  really wanted to be dead, so how can I be afraid of death?. My sister has always declared that people who commit suicide are the most selfish people on the planet. That has always stuck in my mind. The church I grew up in believed you went to hell- something I think is bullshit but I'm ashamed to say I still wonder about.

Maybe I'm a coward- I won't kill myself by slitting my wrists- it hurts. I hate the smell of petrol so gassing myself in the car is out. I won't jump off something high because being on something high without a barrier tends to paralyze me, and I hate that "falling" feeling. Drowning I know, I just know I will come up for air before I loose consciousness and a dead body in water is...yuck. I don't own a gun and the idea of my Mom being confronted with bits of brain is just cruel. That leaves overdosing but even when I have made the decision to swallow all the pills I have...I. just. don't. do. it.

It seems to be that I am the most picky cowardly suicidal punk that ever walked the planet. I'm too scared to go through with it. So I have been living my life in a rut- not being able to stop being suicidal but unable to actually go throw with it. I know it sounds weird but the people I have written about seem incredibly brave to me.

I'm not sure how to end this...I will still be here tomorrow and the next day and the next.....

Tuesday, November 9, 2010

How dumb can you be?...oh earth PLEASE swallow me!!


Yeeeeah!!! SO confession time. And this is HARD!. And this post will be long- make some coffee!

This happened to me on Friday but I have honestly felt so stupid and so embarrassed and ( probably worried too) that it has taken me until today to finally pluck up the courage to share with you how I @#!%*** up!. Feel free to laugh because it is funny in some ways and feel free to be perplexed because and the other hand it made me realize how bad things are.

I had two appointments with Dr Shaw last week. One on Monday and one on Friday. This was all fine the week passed by quickly. I wrote in a post last week that I was struggling with some pain due to BIH and severe fatigue due to a combination of BIH and depression. So I was really out of it, the days seemed to run into one another. My mother was away concluding the sale of her business, my father was locked up in his office as always and my grandmother....well, you never go near my grandmother when you have a headache. I remember feeling relieved on "Wednesday" night, thankful that my appointment wasn't until the day after next.

BUT when my mom woke me up on Thursday I learned that....it was actually Friday. WTF? I was dumbfounded- what had happened to Thursday? Where had the week gone? HOW COULD IT BE FRIDAY?!!!. The most comical argument started between us ("no it isn't!"..."yes it is!"..."no it isn't!"..)  I had never been so confused in my life! What was worse is that my appointment was at 11:00...and it was 11:16 and a few seconds later my blackberry started ringing with Dr Shaws number on it. My mom told me to answer it,  I handed it to her and told her to answer it (cue next comical argument). Eventually I covered my head with my pillow and let it ring off. After much pleading with my mom she eventually went downstairs and phoned Dr. Shaw  to apologize and see if I could get a later appointment- yes I know I should have done this myself but I was to occupied with wanting to shoot myself.

In the end we couldn't get another appointment and Dr. Shaw landed up having a loooong conversation with my mom- who was mostly silent except for "hmm", "oh", "yes" and one "That's not good". And I knew that this was not going to go down very well. All my mom would tell me is that Dr. Shaw told her I was resisting and retreating.

When I got to the appointment yesterday (10 minutes late as usual). She opened the door for me and I knew that I was in for it. She told me she was very worried by what happened and gave me a stern talking to about what happened and that it showed her that I am not living in my life, that I am loosing touch with reality which meant that neither she or my church counsellors were helping me. The word "no" slipped out before I could stop myself. But then I told her that it wasn't anything that they were doing or weren't doing. It was actually me. I felt like crap! And I realised that I should have told her what I had written on this blog weeks ago when I first started therapy.

Basically I didn't have the strength to fight anymore, I was burnt out. I had gone so far down the road to suicide before I started therapy and had just taken a step back from it. Yet I feel to exhausted,  to crawl my way back along the road to recovery...yet again. There was also doubt about seeing Dr Shaw- originally my godfather hoped that six sessions would wrapped things up nicely. Both he and my mother hadn't realised that some people spend months....years in therapy before the are finally able to see some light. So there is always the threat that it will be discontinued....again- Dr Shaw is one of many psychologists that I have seen in my lifetime. And that threat really does affect how I feel about getting help and what I do with it. At first I felt I had to put everything I said in keywords to save time because I didn't know what session would be my last session. So I just haven't really taken it seriously yet.

I didn't have time to tell her all this (mostly because  we ran out of time). But the main topic of the whole session is what I could do to pull myself out of this- I didn't have a whole lot of ideas on that one, because I just don't know. But one thing that has been on my mind for a while is for me to start working  at a non- stressful job- to get me out of the house and in contact with people again. I entered the corporate world at 19 and worked my way up in London to a managerial position in human resources for a big company. I was working for a grocery distribution company in America when I had my breakdown. Since then I have been studying and doing menial jobs for my mother's company which she has now sold. Last year I was booked off any work because of my BIH and I decided to defer my studies this year because I was so ill.

So I have been out of the workforce for a while. I don't know if returning to work would be the wisest thing for a person who so very depressed. But if you spent one day in my house you would understand that it is probably the best thing to do. My house is a circus. I live with my mother, who has been supportive but is mostly unavailable because I am not her only problem. My grandmother who is 83 is in the advanced stages of Alzheimer's- a fall two months ago fractured her hip and she is now mostly bed ridden needing full time care- the energy she drains out of us all is the biggest problem we face. My Dad is bipolar but refuses treatment and also has heart disease. I need to get away!

One thing I worried about when I was talking about with Dr Shaw about getting a job is 1) my family needs me at home. However she pointed out that what was happening wasn't fair, I had been sick too and had mostly had to take care of myself. There is nothing more I can do for my grandmother. And if my sister and I constantly have to keep making sacrifices in the name of family issues we will never get anywhere, or have our own lives. 2) My family is very image conscious, they will really be concerned about what job I get and where and how it will "look" if someone I know sees me. I am thinking of a simple job in a coffee shop or something but if someone "sees" me the impression will be made that I have bombed out with life and the only success I could make was working in a coffee shop. I went to a well known private school and this makes it worse. Such are the petty circles we move in.

I've gone a little off topic. We also spoke about not letting my parent's attitude and words have any control over me, which is part of what I mention above. That will take a lot of work. Old habits will die hard...

Anyway I've got a huge amount of work to do and it all seems to be overwhelming. By Friday I have to come back to Dr. Shaw with a journal of how I am going to go about getting a job. She has also told me she will give me 15 minutes to be late before calling and rescheduling the appointment- which means a cancellation fee. This is more of a motivation to my mom who drives me to these appointments and has made me late nearly every single time. I guess you can call this a little wake up call even though I still feel like I am sitting in a heavy cloud.

Yesterday wasn't all that bad though, I went to my support group and it had a nice ending which I will post tomorrow.

Still feeling a little sheepish :/ and I'm STILL wondering where Thursday went.... :)